After dropping off the older 2 at classes and stopping back home for lunch, we had to switch gears from celebrating Naomi’s special day to taking 5 kids to the hospital for Sophia’s first follow-up visit. They had to search for a room big enough to allow for 5 kids to sit on the floor…thank goodness the floors were carpeted! Saying that Selah doesn’t do well in institutional settings would be a gross understatement. It is like watching a top wind itself up and not knowing when it is going to stop winding and start spinning…Thankfully today full spin was achieved after arriving back home.
As for Sophia, we found out the following:
After having more time to study and review her MRI, the neurologist, neurosurgeon, and radiologist all concurred that she does not have cortical dysplasia, or malformation of the brain. What she does have is a brain damaged by a severe infection from an illness that occurred before she came home to us. What does this mean? It basically means that nothing changes in regard to her prognosis or treatment. The only thing that changed was the discovery of the cause of her current condition. She is scheduled for another MRI in March to make sure everything looks exactly the way it did before and that nothing is changing for the worse. We chose to continue administering the Keppra, and not to change her medication, even though it does appear to be affecting her mood and ability to control her anger and frustration. We will continue to revisit this decision as time moves on. Her neurologist is still confident that she will be on medication her entire life, as her brain will always be the way it is... He is totally relying on medical science however, and does not have the power or wisdom of our almighty creator. The H1N1 virus is what caused this seizure and she may not encounter another one unless she gets hit with something powerful like that again. Of course, we will not know because potential seizures are suppressed by her medication… The only thing the doctor seemed confident in telling us was that seizures and what triggers them largely remains a mystery at this time. Most of our questions were answered with maybe...could possibly…not sure…and likely. Anaia gave me a piece of paper to take notes (so thoughtful) and I ended up writing one whole sentence.
Sophia seems to be handling it all fairly well and have any questions- she still doesn’t know what is seizure looks like and I don’t want to divulge too much before she is ready to hear it. We all got to look at her MRI and the doctor explained everything he saw to the kids who were completely fascinated by all the images. The most shocking was the images that were taken in slices from the top view and included her eye balls! ;0) They also enjoyed seeing her tongue, nose, throat, and ears on the inside…it was a home-school mom’s dream at that point, a spontaneous field trip without any planning or preparation, making dragging all 5 of them there almost worthwhile.
Thank you for your continued prayers for the miraculous healing of Sophia. We pray that it is His will to heal Sophia of any future seizures or need for medication. We thank Him for His provision and care and rest safely in His arms.
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